Mary and her only sibling, Rebekah, have a rare genetic disorder called Primary ciliary dyskinesia (PCD). Mary runs to raise awareness of PCD, lung diseases, rare diseases and oxygen needs. Her goal is to run a race in every state and to complete a marathon in 2017 if not sooner. PCD is a progressive lung … Continued
Hello, my name is Melodie Burnett. Mother, grandmother and wife of 34 years. I was diagnosed with COPD at the age of 47 and had never smoked a day in my life. I spent several months carrying a nebulizer machine with me wherever I went. I was taking 2 different nebulizer treatments 4 times a … Continued
Roxlyn G Cole is a COPD Patient who has pushed the boundaries for many years. In her efforts to fight her disease she has brought much needed exposure to lung disease. Lyn has been kind enough to share her story. It was the 2002 holidays, a pounding fast pulse rate and extreme blood pressure … Continued
Each year I raise funds for research into lung disease. In 2015 I raised over $10,000 usd for the America Lung Association through my New York Marathon run. This year on April 23rd ( my birthday) I will be running the London marathon for the British Lung Foundation. I need your help to raise funds for research … Continued
I know what you’re thinking, this guy is mad! Perhaps a little but what if we can improve our quality of life through sensible experimentation? Would you do it? What is Bio-hacking? Wikipedia’s definition of bio-hacking is do-it-yourself biology, a social movement in which individuals and organisations pursue biology and life science with tools equivalent … Continued
I love surprises Every now and then a product comes along that just says WOW! Indeed, that was my first thought when I opened a very stylish box sent to me by SKINS. My second thought was – if this product performs half as good as it looks then I’m going to be mighty impressed. … Continued
The following article is a guide on how I live my life. I have come to believe these four principals are the key to my quality of life. If you are looking to improve your quality of life I urge you to discuss the four pillars with your doctor. It has worked for me … Continued
Over the past six weeks I have been harassed and subjected to insulting and defamatory comments via email and social media. Originally I thought it beneficial to name the person / people / organisation doing this, but what I have realised is that provides them with more “air”, and would mean I am stooping to … Continued