COPD – TIRED, FRUSTRATED and Disillutioned
On Wednesday November 20th we celebrated World COPD Day around the world. On the same day a patient friend posted in a COPD Patient FB group. When I read this post it brought a tear to my eye. Not just because of the outpouring of frustration and desperation in her message, this patient spoke … Continued
World COPD Day 2019 – “All Together to End COPD”
Each year there is a theme for World COPD Day. This year’s theme in my view is very relevant to how we should approach COPD (chronic obstructive pulmonary disease), now and into the future. Bringing patients, healthcare professionals and researchers together in the fight against this debilitating disease can only lead to better outcomes. … Continued
Patient Partnerships – the good, the bad, and the ugly.
Patients and healthcare professionals working collaboratively for positive outcomes are always going to provide better outcomes than a solution with a narrow band width. We are seeing patient advocates becoming more involved in the decision-making process of disease management which can only be positive. But are all patient partnerships for the good of patients? … Continued
Cairns Ironman with COPD
Standing on the sand at the start of an Ironman event is a daunting experience whether you are an elite athlete or an athlete with COPD. I’m about to jump in the ocean and swim 3.8k (2.4 mile) with 30% lung function and the ocean on this morning resembles a washing machine! As Ironman … Continued